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Relationships | 02/13/2009 12:00 pm

Women and the Brain: A Speakers Series From Project A.L.S.

Who knew that serious brain disease such as A.L.S. may be related to most, if not all brain disorders? 
By Deborah Barrow, Editor-in-Chief

It seems somehow axiomatic that insomnia, happiness, anxiety, addiction and emotional well-being are all related to brain health. 

What is an even more interesting notion is new scientific research being conducted on women and the fatal degenerative brain disease A.L.S.(Lou Gehrig’s Disease) that suggests there are underlying relationships between A.L.S., other degenerative diseases such as Parkinson’s and Alzheimer’s as well as the whole complex of less serious brain disorders.

In other words, by exploring the devastation of A.L.S., medicine may unlock the mysteries behind anxiety and addiction and other ailments.

To explore this intriguing "final frontier" of women’s health, Project A.L.S. is convening the latest in their speakers’ series called "Women and the Brain," where scientists, thinkers, authors and others can speak on a variety of issues dealing with the brain. 

Confirmed speakers include:

Orli R. Etingin, M.D., Vice Chairman of the Department of Medicine, New York Presbyterian Hospital, Weill Cornell Medical center; Founder and Medical Director of the Cantor Women’s Health Center

Gail Saltz, M.D., Psychiatrist, bestselling author and contributor to the "Today Show." Clinical Associate Professor of Psychiatry at New York Presbyterian Hospital

Marianne J. Legato, M.D., Professor of Clinical Medicine, Columbia University; Founder of the Foundation for Gender-Specific Medicine

Nancy Etcoff, Ph.D., Director, Program in Aesthetics and Well-Being, Harvard Medical School and Massachusetts General Hospital

Catherine Birndorf, M.D.,  Director of the Women’s Mental Health program in the Department of Psychiatry at the New York Presbyterian Hospital

What: Cocktails and Panel Discussion, Tickets $100

When: Tuesday, March 3, 5-7 pm, cocktails at 8

Where: Harvard Club, NYC

For More Information go to Project A.L.S.com.

36 Reader Comments (so far…) Sign In or Register to comment

Sandbee (FB) 54
Would love to here what they have to say - am very interested in all brain research since the problems I have had. Am trying to set it up that my brain will go for research so that at least if I don’t know about it now I will do something for it in the future.
By Sandbee (FB) 54 on 02/13/2009 2:24 pm
C jay
Sandbee, this project is dedicated to stem cell transplant research that arose from funds left after a woman died from ALS. Everything should be online that is replicated research by this group. It’s based at … Harvard (like their endowment isn’t sufficient to pay for research that alleviate tremendous suffering, and loss of life). hmmmm?
By C jay on 02/14/2009 1:06 pm
Valerie Robbins
C Jay, Do your homework. Project A.L.S. has raised crucial funds for ALS research and gotten the world’s leading neuroscientists to work together on ALS and related brain diseases. The founder and inspiration of Project A.L.S. was the heroic Jenifer Estess, who decided to devote the rest of her life to finding effective treatments for the fatal disease that eventually took her life—so that no future generation would have suffer. Project A.L.S. is headquartered in New York, not at Harvard, although it has hand-picked Harvard researchers to focus on ALS. V. Robbins
By Valerie Robbins on 02/14/2009 9:14 pm
Valerie Robbins
Please tell us more about this program. Women have paid close attention to other aspects of their health. The brain seems the final frontier.
By Valerie Robbins on 02/13/2009 3:52 pm
Green Tears
I know I have mentioned my parents and their Alzheimers/ Parkinson’s combo, but now we have another brain-related entry. My husband’s sister had surgery for a brain aneurysm this week. I feel I must become a ‘sponge’ and soak up all information possible on the brain and its illnesses - please keep us informed. Thanks!
By Green Tears on 02/13/2009 4:15 pm
Sandbee (FB) 54
Having gone through 2 of those operations I send her all of my best - hope things are going well.
By Sandbee (FB) 54 on 02/13/2009 5:31 pm
Green Tears
Sandbee - thanks for your kind words! She is doing well, it would seem, because each day’s report has been positive. I was talking with my MIL regarding how different this is than so many other medical situations - she still is sedated, but is now breathing on her own after 48 hours. If you don’t mind my asking, what is recovery/recuperation like? It’s still so early, none of this has been discussed. I have just made sure that all the best prayer people I know have been alerted, so there’s a lifeline of prayers for her running up and down the East Coast!
By Green Tears on 02/13/2009 6:08 pm
Sandbee (FB) 54
It is a different situation, I feel like I know about it second hand, I have so little memory of the year that most of the surgeries and recovery went on. But I have pestered my family and they have told and retold me the story. My first was a ruptured aneurysm and I was very lucky that I was taken to the hospital fast enough and they recognized the problem. Then they discovered the other near the brain stem while they were doing tests and felt that it should be clipped because if it went I would not have any chance with it. Recuperation is not fast and seems to be different for each person, I know that I surprised my doctors - I was asking for things to do while I was still in Intensive Care. Of course I would forget form one minute to the next what their name was and why I was there. (This is all hearsay from family) I have great faith in the doctors of Houston, I really believe they are some of the best. This happened to me at 42, I am 60 now so they fixed something right. Please let me know how your sister-in law is doing.
By Sandbee (FB) 54 on 02/13/2009 6:55 pm
Green Tears
Thanks for sharing. I was thinking about how strange it will be for her to realize all the ‘lost’ time once she is alert again. She is in her 50’s and has had some medical issues previously, but nothing of this nature before. We are all glad that she is in a Boston hospital because they do have a good reputation. I will keep you posted. It is wonderful to learn about your success story.
By Green Tears on 02/13/2009 8:16 pm
Melanie Waldrop
Hi Green! I underwent brain surgery in 1997, and the thing that I would like to say to anyone who has a loved one who is having such surgery is to provide them with lots of love and ENCOURAGEMENT. My sugery was for a chiari malformation…The back of my brain was sticking outside the hole at the base of my skull (it is a congenital anomaly that can cause sudden death). My cerebellar tonsils (the part of the brain which is involved with locomotion) were completely outside my skull, and after I had the surgery, I had trouble coordinating my movement/walking/feeding myself, etc. This made me VERY depressed. Also, my intellectual capacity was not affected, yet many of my family and friends did not talk to me like I was the same old Melanie…I guess they were afraid that I would have problems with my mentation, so they just kind of ignored me initially, They would look at me, give me awkward smiles, and say they were glad I had pulled through, but they didn’t try to talk to me or ‘engage’ me in conversation. This depressed me even more. I have often told people that, in retrospect, while prayers given for the success of my surgery were certainly appreciated, I needed prayers for my recovery the most. Most of the problems I had post-op were temporary, and anyone who is going through the same type of difficulties need to be encouraged that, as they continue to heal, that deficits they experience will improve and are generally short-lived. Also, treat them like the same old person you have always known and loved. People are often emotional after brain surgery (this is also generally a short-term problem) so be willing to listen, and provide emotional support when needed. As for practical/safety matters go, If she has had surgery atthe back of her brain, she may have trouble turning her head/looking down until tissue swelling is gone, so make sure nothing (i.e. pets, slippery rugs, etc.) are in her path. As another poster said, every person’s situation may vary, but these were things that happened in my case which were really important. Just riding in a car, or walking out in public was very frightening for awhile, because I couldn’t move my head for a short while…I couldn’t walk very well for a SHORT while, also. So, having someone for physical safety/ support was also required. I hope she has a speedy and complete recovery—you all will be in my prayers!
By Melanie Waldrop on 02/13/2009 11:07 pm
Green Tears
Thank you, Melanie, for sharing your story. As I read your thoughts on prayers, I remembered a conversation that I had with my sister a couple of nights ago. She said she had called the monastery she attends and spoke with one of the nuns there. My sister said that prayers of thanksgiving needed to be offered because the surgery was successful and then prayers for the long period of recovery and a positive outcome would be needed. Prayers and medical treatment come in so many forms, don’t they? I hope to be able to visit my SIL tomorrow.I don’t know if she will be alert yet, but it will be good to see her. I will remember your words in the days ahead as my family and I begin to interact with her as she recovers.
By Green Tears on 02/14/2009 7:08 am
Diana T
Sandbee, I had no idea that you had survived a brain aneurysym. That is what took my husband 10 years ago. He suddenly stopped breathing—was about 3 feet from me when it happened, and all I could do was 911. I ended up with about 8 EMS in our bedroom, and as they were getting to open up for a trache tube, he regained consciousness and started breathing on his own again. Lived for 12 days, and they told him in the ER that if he had a re-bleed, it would kill him because he would also have a brain stem stroke.. He made it within 2 days of the surgery to get it clipped and had the re-bleed/brain stem stroke. They had put him into an induced coma to get the vessels open and were waiting for the vast amount of blood to re-absorb, but that last night, I know he was coming back into being conscious, I don’t think he had the ability to speak. The fact that you are posting to us with your wit and your wisdom is a miracle that words cannot describe, and I admire the tenacity that you obviously have to have brought you through this. A heartfelt thank you for sharing this.
By Diana T on 02/14/2009 1:31 pm
Sandbee (FB) 54
Diana, I wish that I were the type who was able to write a book, I have crammed so much into this life, it seems that most topics that come up hit some personal experience of mine. Not too many people can or would want to claim this one. I still have one aneurysm in my brain that has not been clipped that they said is not as dangerous, would probably only cause blindness if it bled ( I suppose that didn’t seem too bad to them). I just do my best to keep myself healthy, extra low blood pressure, weight and when I found out that my heart rate was going up too much when I exercised I cut back to walking. The location of that one made in impossible to be clipped at the time of the other surgeries. And I don’t want anymore, have just had enough. The one by the brain stem lasted 14 hours and they could not put the bone back that they removed to do the operation so I am still very touchy in that area, notice it when I go to get my hair cut and they put my head back over a bowl. I’m so sorry about your husband, they had me wait for 14 days before the surgery after the bleed. I write about this like I remember it, actually what I have been told. They seem to set that time period for some reason. Was he kept in Intesive Care during that time? They tell me I had to be tied down to the bed there to keep me still. I had my children at a very young age which upset my family at the time but looking back it was the greatest thing because they were pretty much grown when this happened so I didn’t have small ones to be worried about at the same time. It’s strange how life works out.
By Sandbee (FB) 54 on 02/14/2009 3:12 pm
Diana T
They tried to go the 14 days because the aneurysm was so massive that the surgeon could not go get it. It was post-anterior sub-arachnoid—that area behind the right frontal lobe and in the area that is between the skull and the brain. I saw it in the e.e.g. And, yes, the neuro-surgeon had his own special neuro ICU team watching Bill 24/7, with even a TV monitor attached to him. He had a team of neuro and cardiologists. And, until the induced coma took over, he was very restless & agitated; they caught him trying to get out of the bed. The coma kept him quiet; he was not aware of anything around him, so believe me, it was harder on the family than it was on him. He made it within 2 days of that surgery, re-bleed about 10 minutes after the surgeon made his rounds, and I so I put the living will into effect without hesitation.
By Diana T on 02/14/2009 3:46 pm
Sandbee (FB) 54
I am sure it is harder on the family than the patient, as I have said my memory of nearly a year is spotty at best. They tell me that after the first day I was talking to people but would for get from minute to minute what I had said. My Mother says that one of her best memories was after the first surgery when a nurse came in and asked me the usual “Yesterday was Tuesday, do you know what day this is?” I replied ” Wednesday, what do you think I am, stupid?” She said she knew I was still in there somewhere, this was so much my personality coming out. And yes - everyone needs a living will.
By Sandbee (FB) 54 on 02/14/2009 4:31 pm